Sunday, May 24, 2015

another chapter in the ongoing saga....

I had my endoscopic ultrasound and the docs found what they think is a partial blocked bile duct between my pancreas and my gall bladder, which might be causing all the problems. So I have to another procedure with sedation called an ERCP where they are going to try to open the bile duct, etc... The scary thing is that one of the complications is having another possible bout of pancreatitis after the procedure, but they said they will take steps to prevent it.

I'm really hoping that this next procedure gets me on the other side of this whole episode. Everything else seems to be on hold until I can get this cleared up. I still want to get my next sleep study done. I'm trying to do the one day at time type thing right now, cause I feel like I might lose my mind if I don't.

Wednesday, May 6, 2015

My New Malaise Continues

I'm still having the complications from pancreatitis, and I've had to cancel my sleep study appointment, which sets back my trying to help my sleep apnea and migraine problems. My doctor says my CT scan came back normal and I had an endoscopy procedure earlier in the week to look at my digestive tract. That came back normal as well. Now they are going to schedule an endoscopic ultrasound to see the pancreas better.

I'm not sure when you can classify something as another chronic problem, but this has been going on for over a month. And it's not just the pain, but the loss of appetite. I'm never hungry. I can stomach only a couple of foods. Plus there is this horrible malaise feeling, other digestive issues, and constant pain in my upper abdomen.

Tuesday, April 28, 2015

Such a sad state of things....

It feels like I'm down a well and there is no light at the top. Just when my sleep clinic appointment was approaching, I've acquired a new malaise that is throwing me a curve ball. I was hospitalized with pancreatitis a couple weeks ago and it's not getting any better. I had to reschedule my sleep clinic appointment for early May.

My abdominal pain hasn't changed since I left the hospital, and I've lost my appetite to point where I'm living on buttered noodles and toast. The doctors say I have sludge in my gall bladder but they are not sure if that is the cause. Yesterday, I had a CT Scan so hopefully in the next day or two, I will know the results.

Meanwhile, I don't know if I can still keep the upcoming sleep clinic appointment with all this other stuff going on. I'm trying to do that "one day at time" type of thing, but with my tendency to overreact, it's been a battle. On top of this, migraine/sleep apnea thing is going strong, and there are big changes at my job, so I might be down sized.

I am feeling so overwhelmed!

Friday, April 17, 2015

Messy Migraine Mandala



I drew this at 3:00 am one night when I couldn't sleep due to migraine pain.

Monday, April 6, 2015

MarshMallow "My Head is on Fire"



I made a new migraine button on zazzle for myself and I thought I would share it.

Monday, March 30, 2015

The Saga Continues....

My saga continues with the nose surgery and cpap machine. My nose has finally healed enough so I can try to use my cpap machine again, but now the pressure is too much and I can't get to sleep with the mask on. I went back to my sleep apnea doctor and they are going to try to adjust the pressure in my machine down to a four for the next couple of weeks until they can do another sleep study on me to see what is going on in the middle of April.

I'm trying to get my cpap machine back to the medical supply company so they can tweak it, but there was a mix up with the script, so it still hasn't been adjusted. Hopefully, I can get it done this week. Also my employer is questioning my performance at work because they've been changing the metrics of my job and my stats are not up to their expectations, so the migraine/sleep apnea thing is really impacting things right now.

I thought by now that my medical problems might be better so it's so discouraging. I don't want to look at more invasive surgeries down the road. I kept telling myself that if I got through the nose surgery and started using my cpap more, things would be better and it's not happening. What if the next couple of things don't help either???