Wednesday, July 15, 2015

Will it get any better?

I finally heard back from my new gastro doc. He said my blood work all came back negative, and he wants a few more tests done. I have a gastric emptying study scheduled for August, and he wants to do another endoscopy. The problem is that the first available appointment isn't until Sept 15th. So I have to wait two more months to try to get this resolved.

Because of this additional chronic illness, I've missed too much time at work and my employer has cancelled my FMLA, which means I can't take anymore time off work because of illness. They had to use my existing sick time to try to cover the extra days off, which wasn't enough, so I'm being written up for unexcused time. Also, I had been written up due to a performance issue (because of my health as well). I'm very close to losing my job.

Thursday, July 9, 2015

Waiting for news...

I saw the new gastro doc at the great big university hospital. He said he had to get all my records first and he wanted a bunch more blood work before he would let me know what they are going to do next. So I had everything faxed over there and more blood drawn. I'm still waiting for their phone call. I'm trying not to imagine what they are going to say. It's been officially three months since this whole thing started!

Thursday, June 25, 2015

Nothing is Getting Better

I don't think I've ever had such a blue period in my life with my health. My upper abdomen pain continues with all the symptoms of before with the loss of appetite, food tasting horrible, losing weight, stabbing and cramping pain, malaise, etc... I went to see my primary care doctor to catch her up with what's been going on and she wants me to go to The University of Michigan Hospital, so she did a referral for me. I'm seeing a gastro doctor next week as an urgent patient.

Meanwhile at work, things are going from bad to worse. I'm trying so hard to fix things but everything seems to be working against me. I've never gotten in trouble before because of my performance so I'm taking it really hard. It seems like I'm never going to be able to get my next sleep study done because of all these obstacles. And on top of this, my migraines are acting up big time cause of all the stress.

Monday, June 8, 2015

Another chapter

Last Thursday I had the ERCP procedure where the docs cleaned out some sludge from my bile duct and they made a small incision to help things flow better, but I had a bad pain reaction when I woke up. I ended up in the ER for several hours to manage the pain. They let me go home later that night.

Then Friday night, I had a bad fever, along with severe pain, chills, shaking, and nausea. Saturday morning, I was back in the ER and they admitted me to the hospital for a blood infection called Sepsis. I was in the hospital until Tuesday. They pumped me full of antibiotics and they did several more tests to try to find out where infection was coming from.

Now I'm back home with a big bottle of antibiotics. The docs are hoping that the pain will calm down when everything heals up. I'm still having a lot of the same symptoms with pain and nausea like I did before the procedure. My appetite is still off and I'm living on buttered noddles and toast.

Tomorrow, it will be two months since this whole thing started. I have no idea when I will be able to get my sleep study done, and I'm having major problems at work because I'm not meeting my goals. With the chronic daily migraine and severe sleep apnea, I'm already struggling with the exhaustion, loss of concentration, and memory problems. Now I have these other health problems on top of it.

Sunday, May 24, 2015

another chapter in the ongoing saga....

I had my endoscopic ultrasound and the docs found what they think is a partial blocked bile duct between my pancreas and my gall bladder, which might be causing all the problems. So I have to another procedure with sedation called an ERCP where they are going to try to open the bile duct, etc... The scary thing is that one of the complications is having another possible bout of pancreatitis after the procedure, but they said they will take steps to prevent it.

I'm really hoping that this next procedure gets me on the other side of this whole episode. Everything else seems to be on hold until I can get this cleared up. I still want to get my next sleep study done. I'm trying to do the one day at time type thing right now, cause I feel like I might lose my mind if I don't.

Wednesday, May 6, 2015

My New Malaise Continues

I'm still having the complications from pancreatitis, and I've had to cancel my sleep study appointment, which sets back my trying to help my sleep apnea and migraine problems. My doctor says my CT scan came back normal and I had an endoscopy procedure earlier in the week to look at my digestive tract. That came back normal as well. Now they are going to schedule an endoscopic ultrasound to see the pancreas better.

I'm not sure when you can classify something as another chronic problem, but this has been going on for over a month. And it's not just the pain, but the loss of appetite. I'm never hungry. I can stomach only a couple of foods. Plus there is this horrible malaise feeling, other digestive issues, and constant pain in my upper abdomen.

Tuesday, April 28, 2015

Such a sad state of things....

It feels like I'm down a well and there is no light at the top. Just when my sleep clinic appointment was approaching, I've acquired a new malaise that is throwing me a curve ball. I was hospitalized with pancreatitis a couple weeks ago and it's not getting any better. I had to reschedule my sleep clinic appointment for early May.

My abdominal pain hasn't changed since I left the hospital, and I've lost my appetite to point where I'm living on buttered noodles and toast. The doctors say I have sludge in my gall bladder but they are not sure if that is the cause. Yesterday, I had a CT Scan so hopefully in the next day or two, I will know the results.

Meanwhile, I don't know if I can still keep the upcoming sleep clinic appointment with all this other stuff going on. I'm trying to do that "one day at time" type of thing, but with my tendency to overreact, it's been a battle. On top of this, migraine/sleep apnea thing is going strong, and there are big changes at my job, so I might be down sized.

I am feeling so overwhelmed!